Share Your Story

Share Your Story

Purpose

We wanted to give you (parent/caregiver/youth/child) a space to share your stories about the impact of COVID-19 on life with diabetes, and to connect with others. Be as brief or as detailed as you would like. We have added the prompts below to help you start, but feel free to use others.

Prompt

What do these words mean to you?

  • Challenges living with COVID-19 and diabetes
  • Emotional wellbeing and stress
  • Checking blood sugars and taking medicines
  • Sleep
  • Exercise
  • Food insecurity
  • Videogames
  • Handwashing/Surface cleaning
  • Masks – Have you made one at home?
  • Physical distancing
  • Stay at home
  • Is there information you need to help you take better care of diabetes during the COVID-19 pandemic?

Disclaimer: You E-mail address won’t be published. It’s possible that your entry will only be visible in the guestbook after we review it. We reserve the right to delete or not publish entries deemed inappropriate for this website.

1. What parenting advice of children with diabetes can you offer during the COVID-19 pandemic?

2. Has it been hard keeping up with diabetes routines during the pandemic?

3. What are some ways that you and your child with diabetes have fun while at home during the pandemic?

4. Have you explained the COVID-19 pandemic to your child? What did you say?

5. What are some strategies your family is using to prevent the spread of COVID-19?

6. How have you stayed connected with others while staying home?

7. What are some ways that you and your child with diabetes stay active while at home?

8. How are you staying up to date about COVID-19 information while dealing with diabetes during the pandemic?

9. Diabetes care for children is now virtual. What are some positive and negative aspects of this approach?

10. As a parent of a child with diabetes, how do you feel this pandemic has impacted you?

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5 entries.
mcsamaan1 mcsamaan1 wrote on May 16, 2020 at 9:33 am:
What a great story, thank you for sharing Terry
Terry Were Terry Were from Kampala wrote on May 4, 2020 at 11:27 am:
Today we celebrate the *unsung HEROES in the COVID-19 era; the guardians of children with chronic illness in Low resource settings.* They have been their doctors when that pass to allow them to travel on the road during the Lock down is not fast enough or when the going gets tough. I celebrate a " *KOOJA aka Maternal Uncle From a rural town called Mityana in Uganda* ". Beeping for like 19 mins eventually calls on an unknown number. He asks ; Are you a doctor? (all docs are male in some of our villages). Why do you ask? My instinct is this should be a conman wanting to sell fake Gold and i am tempted to hang up. He asks do you know Amos about 19yrs old (not true names) my mind runs to my nephew. I immediately give him as 2nd name but he screams a different name. I replied he is my patient for 9yrs now why? He is unresponsive, staring in the air and has clenched teeth even breathing is almost gone. What do we do? Take him to hospital; the mother knows he is diabetic and knows the first aid. She is not here he came to Mityana during the lock down. Mother is switching off our calls and we found your contact in his documents. What is nearest center, i asked? He replies Mityana hospital is about 40mins on a bike. He has a machine and a drug he injects. Should we give some of the drug! I scream no you will have put the final noose around the neck. Just get honey - impossible he retorts. I add, Ok he has clenched teeth but can't you get sugar and place under the tongue but put him in a seated position and no liquids please, even that is dangerous but try as we get to hospital. What of the machine? Gadgets are always impressive for the comunity. Just ignore for now. He then laughs and says call me in 10minutes because he was calling me in the trading centre away from home because he had no phone units. So he will now ride back home and then I give instructions when he is there. Beeps after 5mins and he does the sugar formula with instructions on phone. But mumbling to himself while on phone!! Let us just try, but i doubt we shall make it!! But why does this boy want to cause problems in our home? why didn't they tell us how to help them? 15 mins later, he says it looks like it may work, he is now blinking and the teeth are no longer clenched. I now instruct him to use the golden machine with guidance. He was excited as he screamed out 3.5mmol. I told him he is not out of the woods yet. He will slip back so give a little more sugar and prepare a meal that he will take when he eventually wakes up. Thirty minutes later, a call comes in and on the other side a soft voice saying - Doctor this is Amos Webale nyo (translated as Thank you very much) now blood sugar is 8. (Desired range is 4-8mml) *Kooja (Maternal Uncle)* with no prior knowledge of caring fo a child with diabetes saved the day.
mcsamaan1 mcsamaan1 from Hamilton wrote on April 30, 2020 at 12:26 pm:
Thank you very much Kristal for your positive feedback. Our team is committed to helping all children, youth, and families deal with diabetes during the COVID-19 pandemic. We are very happy that you found the information helpful. We welcome questions and comments from all of our patients impacted by the pandemic and living with diabetes. We are here to help and support you through this. If you are not a patient with the diabetes program at McMaster Children's Hospital, you can still participate in discussions here.
Kristal Kristal from Hamilton wrote on April 29, 2020 at 2:49 pm:
Thank you!. I have a 12 yo son who is T1D and I work in a LTC facility. I have been very worried about the possibility of spreading COVID-19 to my family and this site has been very informative. We appreciate our team of workers at the MAC clinic and thank them for their dedication.
mcsamaan1 mcsamaan1 from Hamilton wrote on April 28, 2020 at 9:47 am:
Please go ahead and share your stories. This is a forum where you can tell us about the impact of living with COVID-19 and diabetes.

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